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Sunday, July 13th 2008

First Session

Chairman: Florence Kranitz, President, CJD Foundation

Presentations:

  • Comparative study of prion strains associated with iatrogenic and sporadic CJD
  • The centers for Disease Control and Prevention Report: Prion Disease Activities at CDC


Comparative study of prion strains associated with iatrogenic and sporadic CJD

Length: 17 min (Chaptered)
Presenter: Wen-Quan Zou

  • Background
  • Aim
  • Application of sophisticated methods
  • PrPSc typing by Gambetti et al method
  • Identification…
  • ...

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The centers for Disease Control and Prevention Report: Prion Disease Activities at CDC

Length: 22 min (chaptered)
Presenter: Ryan A. Maddox

  • Objective
  • Surveillance
  • What is surveillance?
  • Surveillance
  • CJD surveillance difficulties
  • ...

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Second Session

CJD International Support Alliance Reports

Presentations:

  • The CJD Support Group Network - Australia
  • A.I.En.P
  • Familial CJD and the Caregiver Journey
  • CJD Support of Japan
  • National CJD Care Co-ordinator


The CJD Support Group Network - Australia

Length: 28 min (chaptered)
Presenter: Suzanne Solvyns

  • Our roles and involvement in the CJDSGN
  • Structure of the CJDSGN
  • Purpose of the CJDSGN
  • Education and Awareness Program 'Understanding CJD'
  • ...

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A.I.En.P

Length: 18 min (chaptered)
Presenter: R. Borgis, R. Robello

  • What we will talk about
  • Prion encephalopaties Italian Epidemiological data
  • How everything started
  • The birth of the Association
  • Genova, September 21 - 2007
  • ...

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Familial CJD and the Caregiver Journey

Length: 21 min (chaptered)
Presenter: Deana M. Simpson

  • Dedication
  • Our Story
  • Hospital Experience
  • Physician Experience
  • Friend/Community Experience
  • ...

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CJD Support of Japan

Length: 20 min (chaptered)
Presenter: Minae Asakawa

  • Recent CJD Figures
  • Iatrogenic CJD due to dura mater graft (Lyodura)
  • What happened in Japan
  • Why did they have to die ?
  • What is Yakugai ?
  • ...

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National CJD Care Co-ordinator

Length: 17 min (chaptered)
Presenter: Margaret Leitch

  • Outline of presentation
  • CJD Surveillance Unit
  • History
  • BSE Enquiry/Phillips Report
  • Suggested improvements needed
  • ...

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