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Events

NeuroPrion makes available its video platform and filming knowledge to Patient Associations in order to increase the visibility of their actions.
 
NeuroPrion has thus filmed and put online several events for these associations like:

CJDISA Session during Prion 2011

During the Prion 2011 conference in Montreal, the CJD International Support Alliance delivered the presentation "Supporting those affected by Prion disease the world over". To watch the video of the presentation, please go on the CJDISA section of the "CJD Support Group Network" website.
 

8th CJD Family Conference

CJD 2010 and the Eighth Annual CJD Foundation Family Conference was held July 16-19th in Washington D.C. The conference was planned and sponsored by the U.S. CJD Foundation, the National Prion Disease Pathology Surveillance Center and PrioNet Canada.

During this unique and, what has become a global event, family members come together to hear presentations highlighting the latest prion disease science presented by the researchers who are conducting the work.

The CJD International Support Alliance (CJDISA) consisting of the Directors of Patient/Family Prion Disease Support Foundations around the world, also held their annual meeting prior to the start of the conference. This meeting included attendance by the CJDISA’s formally appointed professional advisors known as the “Friends and Advisors” group.

CJD 2010 culminated with family visits to Congressional Representatives on Capitol Hill. During this event families from around the globe offered their personal stories in an effort to educate and elevate prion disease awareness to the U.S. Congress.

 
Please go to this section to know more about this event.

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7th CJD Family Conference

CJD 2009 and the Seventh Annual CJD Foundation Family Conference was held July 10-13, 2009 in Washington D.C. The conference was sponsored by the U.S. CJD Foundation, the National Prion Disease Pathology Surveillance Center, and PrioNet Canada. The conference was attended by family members and researchers from around the globe and featured presentations from some of the world's leading researchers, CJD Surveillance Center Directors and directors of patient/family support organizations. The CJD International Support Alliance and their Friends/Advisors held their meeting during the conference.
 
The three day conference ended with visits to Congressional Representatives on Capitol Hill. This year, for the first time, many attendees from other countries asked to be included in the Hill visits. They helped provide a global prospective to the importance of prion diseases.
 
Please go to this section to know more about this event.

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CJDISA Session during Prion2008

During the Prion 2008 conference in Madrid,  the CJD International Support Alliance delivered a presentation on “Working together globally to support those affected by prion disease”.
 
Please go to this section to know more about this event.

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6th CJD Family Conference

CJD 2008 and the Sixth Annual CJD Foundation Family Conference was held July 11-13, 2008 in Washington D.C. The conference was sponsored by the CJD Foundation, the National Prion Disease Pathology Surveillance Center, and PrioNet Canada. There were presentations from some of the world's leading researchers, CJD Surveillance Center Directors and directors of patient/family support organizations.
 
The three day conference was attended by families and scientists from all over the world who came together to learn from and about each other. The venue appeared to offer hope to those personally affected and incentive to those looking answers.
 
Please go to this section to know more about this event.

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Presentation of CJD ISA during Prion2007

During Prion 2007, the CJD International Support Alliance was invited to give a talk about the different support groups involved in the alliance and to describe some of the challenges that CJD patients and their families are faced with when confronted with these diseases.

You can now view this talk on the NeuroPrion website section: "Prion 2007".

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